If you have PBC, the idea that someday you might need a liver transplant isn’t easy to think about. I know I didn’t want to consider it, when I was diagnosed in 1992.
But I wish I’d been more prepared for the challenges that arose in 2005, when I learned that I needed a new liver. I hope that sharing my story, today, will help you if and when a transplant becomes necessary.
A bill to expand organ donor registration in Kentucky has successfully made it through the state House of Representatives and now awaits Gov. Matt Bevin’s signature. It is expected to take effect next year.
The legislation, backed by Kentucky Organ Donor Affiliates and Kentucky Circuit Court Clerks’ Trust for Life, was approved by the House on Tuesday after being passed by the Senate earlier this month.
Senate Bill 77 will make it possible to register for organ donation through the Kentucky Online Gateway, a single sign-on system for accessing various government programs. The public also can continue to use old methods, such as signing up when getting a driver’s license or by going online to donatelifeky.org.
While KODA only works with deceased donors, living donation is a program we love and promote as well.
Living donation is completely voluntary. Being a registered organ
donor does not mean you will be called to give an organ while living.
To start the process of becoming a living donor, you must contact the
transplant center of the patient you’re donating to. After that, the
process involves rigorous health testing and matching.
There are two transplant hospitals in the state of Kentucky that have
a living donation program: Jewish Hospital in Louisville and University
of Kentucky Hospital in Lexington. The two most commonly used organs
for living donation are the kidney and liver. You only need one kidney
in order to live and the liver regenerates (grows back) which makes this
type of donation possible.